A COSMIN systematic review of instruments for evaluating health-related quality of life in people with Hereditary Angioedema
Abstract Background Hereditary angioedema (HAE) adversely affects health-related quality of life (HRQoL).HAE often compromises the HRQoL due to the impact on functional capacity caused by edema, pain, other symptoms, and psychosocial factors.Patient-Reported Outcome Measures (PROMs) focus on HRQoL and are crucial tools for evaluating the burden of